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Recommended Reading and Viewing For Alzheimer's CaregiversAlzheimer's research is continually progressing. In order to provide yourself with the most recent information, it is best to read and view as much as you can about the disease process and research presently being conducted in addition to communicating often with the Alzheimer's Association, Alzheimer's Family Organization, and your physician. In this way, you can be assured that the information you acquire is timely and factual. Listed below are recommendations for reading and viewing by Alzheimer's caregivers. You may also want to use the lists we compiled for all caregivers: Caregiver Books/Videos and Caregiver Web Sites|/caregiver/Websites)). Reading for Alzheimer's CaregiversBerg, Gary (Ed.) The Fearless Caregiver Herndon, Virginia: Capital Books, 2001. Feil, Naomi. The Validation Breakthrough Baltimore: Health Professions Press, 1993. Gray-Davidson, Frena. FAQ Alzheimer's Disease Frequently Asked Questions RGA Publishing Group,1998. Gray-Davidson, Frena. The Alzheimer's Sourcebook for Caregivers Los Angeles: Lowell House, 1993. Grollman, Earl and Kosik, M.D. Kenneth. When Someone You Love Has Alzheimer's Boston: Beacon Press, 1996. Gruetzner, Howard. Alzheimer's - A Caregiver's Guide and Source Book New York: John Wiley and Sons, Inc., 1992. LeBlance, Gary Joseph. Staying Afloat in a Sea of Forgetfulness c. 2010. A book on Alzheimer's and dementia caregiving, based on the author's experience of being the primary caregiver for his father for nearly 10 years. He first addressed the need for information on "common sense caregiving" in a weekly column in the Tampa Tribune publication, Hernando Today. This book is "caregiver friendly" and includes vignettes on a variety of topics including the "triumphs and hardships" of "dealing with the disease of Alzheimer's and the world of memory-impairment." Lewis, Robert W., editor. Caregiver's Support Kit Virginia: National Caregiving Foundation. (free to caregivers, 1-800-930-1357). Mace, Nancy L. and Rabins, Peter V. The 36 Hour Day (Revised) Baltimore, MD: Johns Hopkins Press, 1991 Revised. Markin, R.E. The Alzheimer's Cope Book New York: Citadel, 1992. Medina, Ph.D., John. What You Need to Know about Alzheimer's New Harbinger Publications, 1999. Michener, James. Recessional 1994. Sheridan, Carmel, M.A. Failure-Free Activities for the Alzheimer's Patient Available through Amazom.com and other sources (see Caregiver Books/Videos for information) Smith, Sally. The Circle A personal account of the emotional and human side of dealing with dementia. The authour has donated the proceeds of sale as a gift to the Medical University of South Carolina to raise awareness and support for research into Alzheimer's disease, Parkinson's disease, dementia, vision and hearing loss and other age-related problems. See a review at http://www.musc.edu/pr/circle.htm. To obtain a copy of "The Circle" directly, or for other information, contact the Center on Aging at www.musc.edu/aging or by calling 843-792-0712. Snowden, David, Ph.D. Aging with Grace Bantam Books, 2001. For more reading suggestions, see our list of Caregiver Books/Videos for all caregivers. Web Sites For Alzheimer's CaregiversIncreasingly, computers are playing a larger role in consumers accessing information. Below are web sites which may be useful to the Alzheimer's caregiver looking for information. Since new web sites are being developed all the time, it is also good to run a general Internet search for Alzheimer's, Alzheimer's caregiver, etc. on any search engine. AARP Webplace Administration on Aging Ageless Design Alzheimer's Association - Gulf Coast (formerly Tampa Bay) Chapter Alzheimer's Association (National) Alzheimer's Bookstore Alzheimers.com - Caregiving Resource Alzheimer's Companion Magazine Alzheimer's Disease Education and Referral Center Alzheimer's Family Organization Alzheimer's On Line - University of Florida and Department of Elder Affairs The Alzheimer's Page - Washington University in St. Louis Alzheimer's Store ALZwell Caregiver Support American Health Assistance Foundation/Alzheimer's Family Relief Program Area Agency on Aging of Pasco-Pinellas, Inc./Aging Care FL (site you are visiting now) Caregiver's Handbook Caregiving - Online Support: Resources Caregiver's Marketplace (discounts for incontinence supplies, etc.) Center for Medicare & Medicaid Services (CMS) Empowering Caregivers The Family Caregiver Alliance Florida Agency for Health Care Administration - www.fdhc.state.fl.us and Florida Health Finder www.floridahealthfinder.gov/. Florida Department of Elder Affairs Hartford Alzheimer's (Dementia and Driving) Hospice of the Florida Suncoast (Practical Caregiving Tips) National Academy of Elder Law Attorneys (NAELA) National Alliance for Caregiving National Family Caregivers Association National Institute on Aging (NIA) Science Daily (link to the latest research news) Suncoast Gerontology Center Today's Caregiver Magazine For more web sites for caregivers of all types, see Caregiver Web Sites. Videos For Alzheimer's Caregivers"Alzheimer's: What Every African-American Needs to Know" produced by Mayo Clinic Jacksonville, (904) 953-7103. "Complaints of a Dutiful Daughter" by Debra Hoffman, Ph.D. (available through Women Make Movies/New York). "Waves of Stone" from Glaxo "How to Communicate with Someone Who Has Alzheimer's Disease" by Home Care Companion Resources (see Caregiver Books/Videos for information) "Video Respite Series" by Innovative Caregiving Resources (see Caregiver Books/Videos for information) |
