Recommended Reading and Viewing For Alzheimer's Caregivers

Alzheimer's research is continually progressing. In order to provide yourself with the most recent information, it is best to read and view as much as you can about the disease process and research presently being conducted in addition to communicating often with the Alzheimer's Association, Alzheimer's Family Organization, and your physician. In this way, you can be assured that the information you acquire is timely and factual. Listed below are recommendations for reading and viewing by Alzheimer's caregivers. You may also want to use the lists we compiled for all caregivers: Caregiver Books/Videos and Caregiver Web Sites|/caregiver/Websites)).

Reading for Alzheimer's Caregivers

Berg, Gary (Ed.) The Fearless Caregiver Herndon, Virginia: Capital Books, 2001.

Feil, Naomi. The Validation Breakthrough Baltimore: Health Professions Press, 1993.

Gray-Davidson, Frena. FAQ Alzheimer's Disease Frequently Asked Questions RGA Publishing Group,1998.

Gray-Davidson, Frena. The Alzheimer's Sourcebook for Caregivers Los Angeles: Lowell House, 1993.

Grollman, Earl and Kosik, M.D. Kenneth. When Someone You Love Has Alzheimer's Boston: Beacon Press, 1996.

Gruetzner, Howard. Alzheimer's - A Caregiver's Guide and Source Book New York: John Wiley and Sons, Inc., 1992.

Lewis, Robert W., editor. Caregiver's Support Kit Virginia: National Caregiving Foundation. (free to caregivers, 1-800-930-1357).

Mace, Nancy L. and Rabins, Peter V. The 36 Hour Day (Revised) Baltimore, MD: Johns Hopkins Press, 1991 Revised.

Markin, R.E. The Alzheimer's Cope Book New York: Citadel, 1992.

Medina, Ph.D., John. What You Need to Know about Alzheimer's New Harbinger Publications, 1999.

Michener, James. Recessional 1994.

Sheridan, Carmel, M.A. Failure-Free Activities for the Alzheimer's Patient Available through Amazom.com and other sources (see Caregiver Books/Videos for information)

Smith, Sally. The Circle A personal account of the emotional and human side of dealing with dementia. The authour has donated the proceeds of sale as a gift to the Medical University of South Carolina to raise awareness and support for research into Alzheimer's disease, Parkinson's disease, dementia, vision and hearing loss and other age-related problems. See a review at http://www.musc.edu/pr/circle.htm. To obtain a copy of "The Circle" directly, or for other information, contact the Center on Aging at www.musc.edu/aging or by calling 843-792-0712.

Snowden, David, Ph.D. Aging with Grace Bantam Books, 2001.

For more reading suggestions, see our list of Caregiver Books/Videos for all caregivers.

Web Sites For Alzheimer's Caregivers

Increasingly, computers are playing a larger role in consumers accessing information. Below are web sites which may be useful to the Alzheimer's caregiver looking for information. Since new web sites are being developed all the time, it is also good to run a general Internet search for Alzheimer's, Alzheimer's caregiver, etc. on any search engine.

AARP Webplace
www.aarp.org

Administration on Aging
www.aoa.dhhs.gov

Ageless Design
www.agelessdesign.com

Alzheimer's Association - Gulf Coast (formerly Tampa Bay) Chapter
www.alz-tbc.org

Alzheimer's Association (National)
www.alz.org

Alzheimer's Bookstore
www.alzheimersbooks.com

Alzheimers.com - Caregiving Resource
www.alzheimers.com

Alzheimer's Companion Magazine
www.alzheimerscompanion.com

Alzheimer's Disease Education and Referral Center
www.alzheimers.org

Alzheimer's Family Organization
www.alzheimersfamily.org

Alzheimer's On Line - University of Florida and Department of Elder Affairs
http://alzonline.phhp.ufl.edu/

The Alzheimer's Page - Washington University in St. Louis
www.biostat.wustl.edu

Alzheimer's Store
www.Alzstore.com

ALZwell Caregiver Support
www.alzwell.com

American Health Assistance Foundation/Alzheimer's Family Relief Program
www.ahaf.org

Area Agency on Aging of Pasco-Pinellas, Inc./Aging Care FL (site you are visiting now)
www.agingcarefl.org

Assisted Living Facility Locator
http://facilitylocator.floridahealthstat.com/

Caregiver's Handbook
www.biostat.wustl.edu

Caregiving - Online Support: Resources
www.caregiving.com/support/html/resource.htm

Caregiver's Marketplace (discounts for incontinence supplies, etc.)
www.caregiversmarketplace.com

Center for Medicare & Medicaid Services (CMS)
www.medicare.gov

Empowering Caregivers
www.care-givers.com

The Family Caregiver Alliance
www.caregiver.org

Florida Agency for Health Care Administration - Florida Nursing Home Guide
www.fdhc.state.fl.us

Florida Department of Elder Affairs
www.state.fl.us/doea

Hartford Alzheimer's (Dementia and Driving)
www.thehartford.com/alzheimers

Hospice of the Florida Suncoast (Practical Caregiving Tips)
www.thehospice.org

National Academy of Elder Law Attorneys (NAELA)
www.naela.org

National Alliance for Caregiving
www.caregiving.org

National Family Caregivers Association
www.nfcacares.org

National Institute on Aging (NIA)
www.nih.gov/nia

Science Daily (link to the latest research news)
www.sciencedaily.com/

Suncoast Gerontology Center
www.med.usf.edu/suncoast/alzheimer/

Today's Caregiver Magazine
www.caregiver.com

For more web sites for caregivers of all types, see Caregiver Web Sites.

Videos For Alzheimer's Caregivers

"Alzheimer's: What Every African-American Needs to Know" produced by Mayo Clinic Jacksonville, (904) 953-7103.

"Complaints of a Dutiful Daughter" by Debra Hoffman, Ph.D. (available through Women Make Movies/New York).

"Waves of Stone" from Glaxo

"How to Communicate with Someone Who Has Alzheimer's Disease" by Home Care Companion Resources (see Caregiver Books/Videos for information)

"Video Respite Series" by Innovative Caregiving Resources (see Caregiver Books/Videos for information)